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Title	Home - Clinical Management Guidelines for Friedreich
Description	Clinical Management Guidelines for Friedreich Ataxia (FRDA) HOME TABLE OF CONTENTS ABBREVIATIONS SEND FEEDBACK EMERGENCY CARE HOME TABLE OF CONTENTS ABBRE
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US$1,061

Last updated: 2023-05-19 23:55:31

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Clinical Management Guidelines for Friedreich Ataxia (FRDA) HOME TABLE OF CONTENTS ABBREVIATIONS SEND FEEDBACK EMERGENCY CARE HOME TABLE OF CONTENTS ABBREVIATIONS SEND FEEDBACK EMERGENCY CARE Home Introduction | Methodology | Outcome | Disclaimer | Intended Use | Funding | Steering Committee | Authors | Patient & Caregiver Panel | 2022 Guidelines Publication | 2014 Guidelines | Dedication Introduction Despite significant progress in the search for disease modifying agents, the chronic, progressive nature of Friedreich ataxia (FRDA) continues to have a profound impact on the health and well-being of affected individuals. As for those living with other rare diseases, individuals with FRDA often find it difficult to access expert specialist multi-disciplinary care for long-term, evidence-based management. In response to this need, the Consensus Clinical Management Guidelines for Friedreich Ataxia were developed and published in 2014 1 . Since this time, some new evidence in managing FRDA

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frdaguidelines.org valuation and analysis